Group of five friends standing close together with arms around each other on a hilltop at sunset, overlooking a landscape with mountains in the distance.

Public Involvement Matters

Involving patients and the public in research helps ensure that the outcomes are more relevant to real-world needs and more likely to be adopted in healthcare settings. Researchers often gain meaningful insights and practical ideas when they collaborate with people who have lived experience.

We work closely with UCLH Biomedical Research Centre for involving patients and public in our work.

Patient and Public Involvement and Engagement (PPIE)

The Data Trust
Committee (DTC)

We offer health data for research, but not without ethical safeguards.

We’re proud to include members of the public and UCLH clinical staff as equal partners on our ethics committee. The DTC reviews and approves data research applications that are part of our Data Access Process for Research (DAP-R).

Data request applications are reviewed on a monthly basis. The committee members bring invaluable lived experience, perspectives, and expertise. This diverse membership ensures that ethical decisions are grounded in real-world patient insights, strengthening Patient and Public Involvement and Engagement (PPIE).

Having members of the public review our data requests is crucial to maintaining trust and transparency in how patient data is used. The DTC ensures that only studies with patient and public benefit, scientific rigor, and ethical use of data are approved.

Empty modern conference room with large glass windows, a long wooden table, beige ergonomic chairs, a monitor, and a ceiling-mounted projector.

Meet the DTC

  • Black and white portrait of a man with short dark hair and light facial hair, wearing a collared shirt, in an indoor setting.

    Amir Hashmi

    Chair

  • Black and white photo of an elderly woman with glasses, short gray hair, wearing earrings and a collared shirt.

    Marcia Saunders

    Patient Member

  • A smiling man in a suit and tie, posing outdoors near a building.

    Nicholas Woznitza

    Staff Member / Diagnostic Radiographer

  • Portrait of an older woman with short, gray hair wearing sunglasses and a dark patterned blazer, standing in front of a horizontal louvered wall.

    Jan Stockdale

    Patient Member

  • Black and white photo of smiling woman with shoulder-length hair, wearing a patterned sweater.

    Eva Driskell

    Patient Member

  • Black and white photo of a young man with glasses smiling.

    Simon Wan

    Staff Member / Radiologist

  • Black and white portrait of a smiling young man with short, light-colored hair, wearing a collared shirt.

    Ruaraidh Campbell

    Staff Member / Resident Doctor

  • A portrait of a man in a suit and glasses standing outdoors in front of blurred trees.

    Zahed Mannan

    Patient Member

  • A man in a suit standing outdoors with arms crossed, smiling, with lush foliage in the background.

    Nathan Lea

    Patient Member

  • Jacqueline Edwards

    Patient Member

  • Yogi Amin

    Staff Member